The one about D-Day…

Today is the 25th of October.  Just another autumn day for most people.

4 years ago, at around 10am, this day took on another meaning for me.

I went to my regular checkup, and found that baby A had barely any fluid, whilst baby B was swimming in her fluid.  We had suspected, then confirmed later, TTTS.  This day was horrible – I had so many ultrasounds, talked to many doctors, including one that told us we should make funeral plans for our babies.  The next few days were spent in shock and tears, as we came to grips with what was happening.

Today is our D-Day.  Today it’s 4 years since we got the diagnosis that changed our lives, and makes us count our blessings.

I look back at everything we went through with uncertainty, and the ongoing fear of the worst, and I can’t believe that we came through with our sanity and sense of humour intact.

The constant travel to and from Leiden, the endless appointments, the sometimes brutal honesty of the situation really did take its toll on us.  Then the weeks in the NICU, followed by months of therapies, as well as getting used to having 2 babies in the house… I seriously don’t know how we did it.

I know I make light of the situation at times, but please don’t ever think I don’t take what happened to us seriously.  I wake up each day and am so grateful that I am in this country, that I had access to the best doctors and the researchers. I’m acutely aware of how lucky we are. Every day I see new cases and I see stories that are so similar to mine, and yet so many different and sometimes sad outcomes.

4 years has taught me patience.  It’s taught me that my writing is important.  It’s taught me that it’s important to share my story.

I’ve met some awesome people and met some amazing friends on this journey.  I hope I’ll meet some more.  I love using my voice and my writing to help people understand my journey.

So here’s to another 4 years of memories, and facing each October 25th and staring it in the eye 😉

This is what 4 years of memories looks like (well, this is half of a box. I have another box as well).

The one about the Wikkelkinderen…

I hinted a while back that I was working on a story that was a slight deviation from my usual style of writing – and it was published today on Amsterdam Mamas – a website dedicated to parenting in the Netherlands.

The story was my story, intertwined with a fascinating story behind a painting in a castle, not too far from my house.  However, the painting is significant to me. Continue reading The one about the Wikkelkinderen…

The one about the vaguebooking LUMC post

I kind of vaguebooked yesterday about what was going on and why I was at the LUMC, and also to my friends who mentioned that I didn’t sound ok with what happened yesterday – I want to reassure you I am fine. Thank you for the messages and the love xx

Continue reading The one about the vaguebooking LUMC post

The one about the perfect gift …

Warning – this post contains images of placentas. If your stomach isn’t so great, time to move along … 😉

Oddly enough, this post isn’t about my poor, long suffering husband ;).

Over the years, I’ve developed a unique relationship with our research doctor, all based on the tale I told about the girls placenta. (It’s worth the click. Really).  I share updates on the girls progress and catch up on the occasion we’re visiting the LUMC. Continue reading The one about the perfect gift …