It’s a quick update, I know. I’m actually trying to be good and stick to my scheduled blogging times (for now), and I’ve been doing sort of well with it. I’ve done a bit of tweaking, I now have my own domain and am slowly working now towards upgrading and building a bit more stuff around the site. I mean, I NEVER expect to take off and all that, but hey, when your google rankings are not bad, you take advantage of that and make things look pretty. Continue reading The one about the TAPS support group
Today is the 25th of October. Just another autumn day for most people.
4 years ago, at around 10am, this day took on another meaning for me.
I went to my regular checkup, and found that baby A had barely any fluid, whilst baby B was swimming in her fluid. We had suspected, then confirmed later, TTTS. This day was horrible – I had so many ultrasounds, talked to many doctors, including one that told us we should make funeral plans for our babies. The next few days were spent in shock and tears, as we came to grips with what was happening.
Today is our D-Day. Today it’s 4 years since we got the diagnosis that changed our lives, and makes us count our blessings.
I look back at everything we went through with uncertainty, and the ongoing fear of the worst, and I can’t believe that we came through with our sanity and sense of humour intact.
The constant travel to and from Leiden, the endless appointments, the sometimes brutal honesty of the situation really did take its toll on us. Then the weeks in the NICU, followed by months of therapies, as well as getting used to having 2 babies in the house… I seriously don’t know how we did it.
I know I make light of the situation at times, but please don’t ever think I don’t take what happened to us seriously. I wake up each day and am so grateful that I am in this country, that I had access to the best doctors and the researchers. I’m acutely aware of how lucky we are. Every day I see new cases and I see stories that are so similar to mine, and yet so many different and sometimes sad outcomes.
4 years has taught me patience. It’s taught me that my writing is important. It’s taught me that it’s important to share my story.
I’ve met some awesome people and met some amazing friends on this journey. I hope I’ll meet some more. I love using my voice and my writing to help people understand my journey.
So here’s to another 4 years of memories, and facing each October 25th and staring it in the eye 😉
I have to say, I love this time of year in the Netherlands. Yes, it’s a bit miserable, rainy and starting to get cold. But there’s one thing I love every year – the oliebollen!
Oliebollen are traditional eaten at New Year, but from the first of October stalls pop up everywhere selling the delicious, hot Dutch-style donuts. The smell is amazing! Continue reading The one about the oliebollen …
I hinted a while back that I was working on a story that was a slight deviation from my usual style of writing – and it was published today on Amsterdam Mamas – a website dedicated to parenting in the Netherlands.
The story was my story, intertwined with a fascinating story behind a painting in a castle, not too far from my house. However, the painting is significant to me. Continue reading The one about the Wikkelkinderen…