This is an ever-growing list of resources – please check back frequently! The links below are links I’ve personally found valuable or give good information. The support groups listed are places I find helpful and provide support.
TTTS/TAPS Information
Twin Anemia Polycythemia Sequence (TAPS) Support Website
In het Nederlands: Foetaletherapie.nl
TTTS/TAPS Support
Twin Anemia Polycythemia Sequence (TAPS) Support Facebook Group
Fetal Health Foundation and their Facebook Group – TTTS Hope and Connections
TTTS Australia and New Zealand (Facebook)
This Page’s preferred charities:
Your local children’s hospital’s neonatal unit. The doctors and nurses in the NICU are saints and need support.
Interesting Links
The speech by Dr Lopriore at his promotion to Professor of Fetal Medicine featured Emilie and Mathilde’s story (Dutch) and a background article (Dutch)
My professional website and portfolio – stephanieernst.nl
International Council of Multiple Birth Organisations (ICOMBO)
found your site through ‘Muiderslot Wikkelkinderen’
interesting how differently people link to the twins
wrote a story-book about Me and Ilpenstein, called “De Wikkelkinderen van Ilpenstein”
published 2016
available through internet/bookshop
greetings!
Guus de Wildt
Hi Guus! I will look out for the book for sure. I’m extremely interested to know if you anything more about the painting – I have contacted the Rijksmuseum as well with limited success (some extra links, but nothing extraordinary.) I’d love it if you could contact me at inbuggeringdiaries@gmail.com. The painting is so haunting for me – it really resonates on a personal level. Thanks for taking the time to comment!