Important Links

This is an ever-growing list of resources – please check back frequently!  The links below are links I’ve personally found valuable or give good information.  The support groups listed are places I find helpful and provide support.

TTTS/TAPS Information

Twin Anemia Polycythemia Sequence (TAPS) Support Website

Fetal Health Foundation

TTTS Support Team

In het Nederlands:


Twin Anemia Polycythemia Sequence (TAPS) Support Facebook Group

Fetal Health Foundation and their Facebook Group – TTTS Hope and Connections

TTTS Australia and New Zealand (Facebook)

This Page’s preferred charities:

The TAPS Support Foundation

Fetal Health Foundation

Your local children’s hospital’s neonatal unit.  The doctors and nurses in the NICU are saints and need support.

Interesting Links

The speech by Dr Lopriore at his promotion to Professor of Fetal Medicine featured Emilie and Mathilde’s story (Dutch) and a background article (Dutch)

My professional website and portfolio –

International Council of Multiple Birth Organisations (ICOMBO)

2 Replies to “Important Links”

  1. found your site through ‘Muiderslot Wikkelkinderen’
    interesting how differently people link to the twins
    wrote a story-book about Me and Ilpenstein, called “De Wikkelkinderen van Ilpenstein”
    published 2016
    available through internet/bookshop
    Guus de Wildt

    1. Hi Guus! I will look out for the book for sure. I’m extremely interested to know if you anything more about the painting – I have contacted the Rijksmuseum as well with limited success (some extra links, but nothing extraordinary.) I’d love it if you could contact me at The painting is so haunting for me – it really resonates on a personal level. Thanks for taking the time to comment!

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