Important Links

This is an ever growing list of resources – please check back frequently!  The links below are links I’ve personally found valuable or give good information.  The support groups listed are places I find useful and give support.

TTTS/TAPS Information

FetusNed.nl

TTTS/TAPS Support

Twin Anaemia Polycythemia Sequence (TAPS) Support

Fetal Health Foundation and their Facebook Group – TTTS Hope and Connections

TTTS Australia and New Zealand (Facebook)

This Page’s preferred charities:

TTTS Support Team – sending care packages to those affected by TTTS.  I volunteer for this group and they need all the support they can get.

Do you use Amazon? Please use this link to use Amazon Smile and donate to the TTTS Support team with every purchase you make.  They’ll receive a small portion of the profits when you do!

Your local children’s hospital’s neonatal unit.  The doctors and nurses in the NICU are saints and need the support

Interesting Links

The speech by Dr Lopriore at his promotion to Professor of Fetal Medicine featuring Emilie and Mathilde’s story (Dutch) and a background article (Dutch)

Useful Stuff and Tools (and what I use to run this page!)

Canva – online graphic design

Pixabay – Royalty free stock images

Mailchimp – Newsletters made easy

WordPress  – Blog tool

Hootsuite – Social Media Management

2 thoughts on “Important Links”

  1. found your site through ‘Muiderslot Wikkelkinderen’
    interesting how differently people link to the twins
    wrote a story-book about Me and Ilpenstein, called “De Wikkelkinderen van Ilpenstein”
    published 2016
    available through internet/bookshop
    greetings!
    Guus de Wildt

    Liked by 1 person

    1. Hi Guus! I will look out for the book for sure. I’m extremely interested to know if you anything more about the painting – I have contacted the Rijksmuseum as well with limited success (some extra links, but nothing extraordinary.) I’d love it if you could contact me at inbuggeringdiaries@gmail.com. The painting is so haunting for me – it really resonates on a personal level. Thanks for taking the time to comment!

      Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.