At the bottom of this post there are links to a fundraiser. All proceeds go directly to the TTTS Support Team so that they can continue their amazing work with grieving families. Thank you in advance for your donations!
On the 20th of January, I turn 40. Crazy, right? I mean, 40 seems like you should have everything sorted out and be a responsible, mature adult and all that shit.
Seriously, no pressure. None at all.
Continue reading “The one about the birthday fundraiser..”
You get so much medical jargon thrown at you when you’re diagnosed with a disease like TTTS and TAPS – and sometimes it’s really hard to process it. There’s a lot of medical terms and it’s quite overwhelming. People start talking about DVP’s and MCA’s and cord flow and start talking about amnios and lasers and SFR … it’s confusing and overwhelming.
For the purpose of this post, I will only be referring to identical twins who share a placenta. There are always exceptions to every rule, but the key to this post is simplicity. So on that note, I am specifically referring the most common denominator – identical twins, sharing a placenta. Continue reading “The one about the difference between TTTS and TAPS”
Hello again! It’s that time of the year where I campaign relentlessly for TTTS and TAPS awareness. December is a special time of year, where emotions take the better part of me and my passion for spreading awareness increases.
Continue reading “The one about TTTS Awareness Month”
Today is the 25th of October. Just another autumn day for most people.
4 years ago, at around 10am, this day took on another meaning for me.
I went to my regular checkup, and found that baby A had barely any fluid, whilst baby B was swimming in her fluid. We had suspected, then confirmed later, TTTS. This day was horrible – I had so many ultrasounds, talked to many doctors, including one that told us we should make funeral plans for our babies. The next few days were spent in shock and tears, as we came to grips with what was happening.
Continue reading “The one about D-Day…”
I hinted a while back that I was working on a story that was a slight deviation from my usual style of writing – and it was published today on Amsterdam Mamas – a website dedicated to parenting in the Netherlands.
The story was my story, intertwined with a fascinating story behind a painting in a castle, not too far from my house. However, the painting is significant to me. Continue reading “The one about the Wikkelkinderen…”