Let me be the first to say – this is by no means dissing any of my existing friends, especially those who are close to me and have been by my side throughout everything. Â You are all wonderful, and I value you all.
3 years ago, I was struggling with the TTTS/TAPS diagnosis, endless doctors appointments, not knowing if my children would live or die. Â I was in a country where I barely spoke the language, with only my husband knowing the full extent of what was going on, and our parents to a lesser extent. Â A lot of my pain and hurt I hid from public view (this is part of who I am) and internalised. Â On top of that, being part of this mysterious 10% that got a condition that not many people understand, and not being able to find good, reliable and easy to understand information about – things were stressful. Â And it felt like I was alone. Very alone. Â 16,000 kilometres away from my family and friends, and very little emotional support. Continue reading “The one about finding people who get where you’ve been …”